Showing posts with label medically fragile child. Show all posts
Showing posts with label medically fragile child. Show all posts

Thursday, July 18, 2013

Online Matching Events — everyone’s invited!



We are known for hosting matching events to assist youth in foster care in finding their forever families. For more than 25 years, these events have been a core service we offer  in the tri-state area of Southeastern Pennsylvania, New Jersey and Delaware. We host match events designed for specifically for the youth we are serving at that time; for example, we have held events for teens only and for sibling groups only.

Until recently, our events have been face to face, providing the opportunity for interaction between youth, families and workers. What we have learned from our experience hosting these events is that everyone is not appropriate to attend (this includes youth and families). Some youth are quiet and reserved and don't take well to the socializing that comes with an event. Some youth are not physically able to attend, like some of the youth we work with who are medically fragile. The term "medically fragile" means that the youth has a disability, is in stable condition, but is dependent on life sustaining medications, treatments, equipment and has need for assistance with activities of daily living. The disabilities may be due to an accident, illness, congenital disorder, abuse or neglect.

 We believe that "there are no unwanted children...just unfound families" and that all children deserve recruitment opportunities. One way that we have been able to include all youth in the match event process is by participating in online match events. Crystal, one of our Adoption Coordinators, recently participated in one of these parties, presenting six youth from her caseload. Via a webinar format, she shared photos, fun facts and personal stories about each youth. One youth who was featured was Rashawn, pictured above.

Rashawn, or Ra Ra as he is affectionately known, is a handsome and rapidly growing teenager. Ra Ra is nonverbal and legally blind but he is good at distinguishing different sounds and can recognize people by their voices. Ra Ra is affectionate, friendly and loves attention. He can be quite charming and is known for getting his way by batting his eyes and smiling.

Ra Ra had a traumatic brain injury as a baby. He requires assistance with daily living tasks such as bathing, feeding, dressing and toileting. Ra Ra resides at a pediatric medical facility and attends a special education school.

Ra Ra uses a wheelchair but he prefers to crawl about on his own. He enjoys pet therapy and especially likes dogs. Ra Ra has a feeding tube but takes most of his meals orally, eating pureed food. While at school, Ra Ra is learning to feed himself using a special spoon.

An ideal family for Rashawn is one with a medical background or an interest in learning how to provide for his medical care. 

To know more about Rashawn, contact Crystal by phone at: 267-443-1867 or by email at: callen@adopt.org.

Friday, February 4, 2011

My “Unadoptable” Son

Below is the story of a mother and her son. When others felt her son was “unadoptable” she knew otherwise.


My “Unadoptable” Son

I met my son when I worked a long term care facility for children. I am a physical therapist. Tim* came to the facility as a crack baby with multiple medical complications. He was born at 26 weeks in a crack house in Camden. Somehow he managed to survive his birth. He had three brain bleeds at birth, as well as hydrocephaly and seizures. A shunt was placed for the hydrocephaly. A feeding tube was placed because he couldn't coordinate drinking from a bottle. He spent months in Cooper Hospital’s NICU, and then did a stay in a rehab hospital. After that, he was moved to a residence for medically fragile children in Camden to await a foster home equipped to handle his needs. This was all before he turned one. A home wasn't found; he had some medical complications, so he was moved to the long term care facility where I worked.

Once at the facility, his birth mother was prevented from seeing him due to threatening staff. His birth father then surfaced, and he expressed interest in bringing Tim home. However he could never get his act together to do this.

I was Tim's PT from the time he arrived until I brought him home -- four years later. It took DYFS that long to finally terminate his parental rights! At that time I was leaving the facility to pursue another job in Early Intervention. I hated leaving Tim behind, and knew that his caseworker was not actively looking for a home for him. So I decided as a single parent that I would bring home home.

Tim's medical history reads like a train wreck. He has cerebral palsy, reflux, hydrocephaly, severe dysphasia, motor and cognitive impairments. He was 100% tube fed when I brought him home. I taught him how to eat, although he still doesn't know how to chew, so I have to chop his food up. We have multiple doctors’ appointments annually with all of his specialists at CHOP. He had two shunt surgeries last year in seven weeks. He sounds pretty “unadoptable” doesn’t he?

Now for the good part. He is an adorable loving boy who talks, walks, runs. He loves Monster trucks, plays video games, and is learning to read, do math, science, etc. He's not a "normal" 12-year-old. But he is my Time, and I love him! Even if he never made any more progress than where he was when I brought him home, I would have loved him as much as I do today. He is a true joy, and brings happiness to everyone he meets. My life would be empty without him.

* Not his real name